Living with Albinism

The boys and I made it back from the land of cream teas and hedgerows. I think I can say that we had a blast, thanks Nana! Nash did so well navigating new and unknown territories and I think we all enjoyed the 50 degree temperatures as oppose to the 90 degrees we had left behind.

This morning I was clearing out my inbox and I came across this video Living with Albinism about 2 boys with albinism living in America. It gives a little peak into their lives and how they cope with their vision impairment. It also sums up what most parents feel when faced with the diagnosis of albinism. Incase you haven’t understood all my ramblings about Albinism this video pretty much sums it up.

Featured image – Nash in a blue jacket and Jack in a grey sweater in the foreground playing on the beach with the sea and sun setting in the background.

 

Across the pond

My boys and I took a little trip when I say little I mean a 10-hour flight across the ocean to the motherland. We made it in one piece, my sanity still intact looking a little disheveled and covered in various crumbs and stains from the hundreds of snacks my kids wanted to eat. The husband was not in town and is now relaxing in a quiet house doing whatever he wants. I can absolutely say I’m not jealous at all.

Having not been back here for two years I didn’t think I really missed anything about it but now I am here there is so much I love about this country. I love the silly crisps they have like Chipsticks and Monster Munch, I really love scotch eggs, I love the crazy accents, my crazy family, the old pubs, the old buildings and the British humor. I actually missed prepackaged sandwiches (don’t judge me). I can’t remember the last time I saw animals, wildlife in actual nature and not at the zoo but out on the country roads. In Houston, I feel like you need to drive an hour and a half just to get to the city limits. Most of all I miss the stiff upper lip of the British. I don’t think it is that British people are unemotional I think it is just the fact we don’t feel the need to talk about our feelings all the time or ask a private question to people we don’t know.

Since arriving not one person has commented on Nash. No comments on his skin tone, hair or whether the boys are related or if he is mine. I feel so much more at ease without strangers suddenly accosting me and asking random questions. I’m sure for people with albinism in any country experiences differ, maybe you have albinism and live here and always get questions. Maybe it would be different if I was in a different part of the country. Regardless, I do think something has to be said for the stiff upper lip, whatever the reason behind the silence I’ll enjoy it while it lasts.

Featured image – black and white photograph of a heart shaped stone found by my son on the beach at Charmouth.