When I think of albinism I think of strength, beauty and perseverance. Today is the day we celebrate the Human Rights of people with Albinism everywhere. In 2014, the United Nations’ General Assembly adopted a resolution establishing June 13th as International Albinism Awareness Day. Awareness of human rights situations of persons with albinism remains fairly limited.
After attending a Low Vision Conference in Austin and listening to one of the guest speakers talk about his work with organizations such as Under The Same Sun I was reminded of how so many people with albinism particularly those in Africa do not enjoy the same rights that people living here in America do. I feel lucky to live in a country that advocates for the rights of people with Albinism with organizations like NOAH (National Organization for Albinism and Hypopigmentation) who help to increase awareness and understanding of albinism.
Despite the initial fear an anxiety we felt when Nash was first diagnosed with albinism I have come to realize how enlightening and humbling this journey is. When I think of my journey as a parent I think of this quote “While we try to teach our children all about life, our children teach us what life is all about.” – Angela Schwindt.