Nystagmus Network

A short and sweet post to share this gem of a booklet produced by the Nystagmus Network: nystagmus-booklet-for-teachers-january-2017.  The Nystagmus Network is committed to distributing information about nystagmus, supporting the research into a potential treatment and raising awareness of the condition. I have learned more about Nystagmus in the past few months since I connected with this organization than … Continue reading Nystagmus Network

New technology for the visually impaired and blind.

I can't believe it is almost the end of February already. We made it though Valentines day unscathed and feeling happy. Life, children, marriage, puppies (gah!) are never perfect or easy, but I have been a pretty lucky lady this far. March brings us closer to Nash's second birthday, where has the time gone? It … Continue reading New technology for the visually impaired and blind.

Albinism and its related syndromes

After seeing a post on Facebook the other day I was reminded that I wanted to write a little bit about the other syndromes associated with Albinism in a bid to spread awareness to parents of kids with albinism. I briefly touched on or maybe mentioned that there are other syndromes that can be related to … Continue reading Albinism and its related syndromes

Albinism awareness one red carpet at a time.

I feel like I haven't written anything in a while although it probably hasn't been that long and really this blog wasn't intended to be a summary of my daily life. You would be bored senseless if it was. I woke up this morning and noticed an article about a young girl walking the red … Continue reading Albinism awareness one red carpet at a time.