The other day a friend asked me, "What does ARD stand for?" After just coming out of a 2 hour ARD meeting you think I would know but in fact, I had no idea. And yes, I am the kind of person that goes out into the world without having all the details even when … Continue reading ARD
Today is almost over here in Houston Texas and it is certainly over for many of our friends and family on the other side of the world. If you didn't know today is Giving Tuesday, a day of giving moved by the power of social media and collaboration. It is a day to celebrate and encourage … Continue reading Giving Tuesday
For those of you who don't know May is Skin Cancer Awareness Month. In this family, we know all too well the risks associated with too much sun. One of the first topics I decided to write about when I started this blog was sunscreens in a blog post of the same name. Applying sunscreen on … Continue reading Skin Cancer Awareness Month
A short and sweet post to share this gem of a booklet produced by the Nystagmus Network: nystagmus-booklet-for-teachers-january-2017. The Nystagmus Network is committed to distributing information about nystagmus, supporting the research into a potential treatment and raising awareness of the condition. I have learned more about Nystagmus in the past few months since I connected with this organization than … Continue reading Nystagmus Network
I can't believe it is almost the end of February already. We made it though Valentines day unscathed and feeling happy. Life, children, marriage, puppies (gah!) are never perfect or easy, but I have been a pretty lucky lady this far. March brings us closer to Nash's second birthday, where has the time gone? It … Continue reading New technology for the visually impaired and blind.
A lot has happened since New Year and today January 20th, 2017. Donald Trump was sworn in as the 45th president of the United States of America, for half of the population living here, I am sure this was a huge celebration. If you are like me I am frightened, not necessarily frightened of our … Continue reading ‘Merica behold the splendor.
One of the main purposes for starting this blog was to spread awareness about albinism. When I talk about awareness I mean sending a message, getting attention, and getting people to talk about albinism even if it is in the smallest way. I hope that by doing this the few people who read my blog take … Continue reading Outside The Box
After seeing a post on Facebook the other day I was reminded that I wanted to write a little bit about the other syndromes associated with Albinism in a bid to spread awareness to parents of kids with albinism. I briefly touched on or maybe mentioned that there are other syndromes that can be related to … Continue reading Albinism and its related syndromes
I feel like I haven't written anything in a while although it probably hasn't been that long and really this blog wasn't intended to be a summary of my daily life. You would be bored senseless if it was. I woke up this morning and noticed an article about a young girl walking the red … Continue reading Albinism awareness one red carpet at a time.
When I was living in Scotland applying sunscreen was at the bottom of my to do list even on rare hot days. Pregnant and breastfeeding women are encouraged to take Vitamin D supplements due to the lack of sunlight. Apparently Scots only get enough sunlight of the right wavelength for their bodies to make Vitamin D … Continue reading Sunscreens