What is the idea behind IDEA? For those of you living elsewhere in the world this Federal Law won't concern you much but for those of us living in America who have kids with disabilities, it is a pretty important law. I have to admit that even though I have a kid with a disability … Continue reading What is the idea behind IDEA?
The boys and I made it back from the land of cream teas and hedgerows. I think I can say that we had a blast, thanks Nana! Nash did so well navigating new and unknown territories and I think we all enjoyed the 50 degree temperatures as oppose to the 90 degrees we had left behind. This … Continue reading Living with Albinism
Hilton Langenhoven won gold in the long jump at the Paralympic games. He is a South African athlete and 3-time Paralympic champion who just so happens to have albinism. I noticed in a picture of him carrying his countries flag that he had some awesome sunglasses on and it started to make me think about what makes … Continue reading What makes a great pair of sunglasses?
I am sitting here in the dark, sweaty and hot with a head light on my head since our power has gone out. Welcome to Houston! We just got back from a wonderful trip visiting some friends in the not so stinking hot Lake Tahoe area. After settling the screaming children, one who was frightened and … Continue reading Depth perception
I had a conversation with a friend recently about how my eldest son and her son weren't 'runners' - that is to say they always stay pretty close to home, mom, dad and generally listen when told not to go further. I say generally, as let's face it no child listens all the time. I … Continue reading Fearless
This came through my email this morning and thought it was worth a share: The Albino Code Dennis Hurley is a man with albinism and in 2006 he released a short movie, The Albino Code, a parody of The DaVinci Code which he wrote and starred in. He likes to poke fun at the often cliched writing and casting decisions Hollywood … Continue reading The Albino Code
The word Albino is it a derogatory word or just another label among the masses of labels we accumulate as human beings? The word is thought to come from the Latin, albus, meaning white. It also means blank, as in devoid of color or features. Bill Sherk author of the 500 Years of New Words, states the word … Continue reading Is Albino a derogatory word.
"The 2030 Sustainable Development Agenda pledges to leave no one behind. That includes people with albinism. The cycle of attacks, discrimination, and poverty must be broken" BAN KI-MOON UN Secretary-General For those of you who don't know, today is International Albinism Awareness Day. The United Nations Human Rights Council adopted a resolution urging for the prevention of attacks … Continue reading International Albinism Awareness Day
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