This morning as I was breaking one of my two New Year resolutions, to be on my phone less around my children, the second is yelling (broke that one probably the second day of the new year) - I came across an interesting video titled Breaking Myths about albinism. Here was a simple way I … Continue reading Breaking Myths
What I learned at a Low Vision Conference!
The other day a friend asked me, "What does ARD stand for?" After just coming out of a 2 hour ARD meeting you think I would know but in fact, I had no idea. And yes, I am the kind of person that goes out into the world without having all the details even when … Continue reading ARD
I emailed a lady called Mala Bryan a while back asking if she was indeed going to make a doll that resembled a person with albinism (this was back in March) and she said she had an 18-inch doll in the works. Well, she did it, she created Alexa. Alexa was designed to "help create awareness … Continue reading Alexa, the newest lady to join Malaville
A short and sweet post to share this gem of a booklet produced by the Nystagmus Network: nystagmus-booklet-for-teachers-january-2017. The Nystagmus Network is committed to distributing information about nystagmus, supporting the research into a potential treatment and raising awareness of the condition. I have learned more about Nystagmus in the past few months since I connected with this organization than … Continue reading Nystagmus Network
Thousands of people with albinism are at huge risk of being abducted and killed in Sub-Saharan African communities, especially among East Africans. Malawi is one such country whose superstitious beliefs are perpetuating attacks on people with albinism. Many people believe that the body parts of a person with albinism are thought to transmit magical powers. These beliefs are … Continue reading Petition to Malawian President
Thanksgiving is just around the corner, this holiday doesn't hold much meaning to me being a Brit by birth. I do however enjoy taking time out to be thankful, so despite my misgiving about celebrating this day, it is still a day that stands out. It is a day where I can intentionally take a breath, be aware … Continue reading Something to be thankful for