I just looked back at a facebook post from the end of 2019 that said this "Happy New year to all my friends across the globe, miss you, love you and hope 2020 brings great joy." Sure Laura nice sentiment if only foresight was my thing. This year has seen America become even more divided, … Continue reading NOAH Conference 2020
What happens when you are trying to survive the summer during COVID-19 in Texas? You head to your community pool thats what but with that comes all the extra need for sun protection and a bucket load of hand sanitizer. I hear you thinking community pool and COVID-19 well our pool is pretty unique. It … Continue reading Surviving the summer poolside
This morning as I was breaking one of my two New Year resolutions, to be on my phone less around my children, the second is yelling (broke that one probably the second day of the new year) - I came across an interesting video titled Breaking Myths about albinism. Here was a simple way I … Continue reading Breaking Myths
What I learned at a Low Vision Conference!
The other day a friend asked me, "What does ARD stand for?" After just coming out of a 2 hour ARD meeting you think I would know but in fact, I had no idea. And yes, I am the kind of person that goes out into the world without having all the details even when … Continue reading ARD
I emailed a lady called Mala Bryan a while back asking if she was indeed going to make a doll that resembled a person with albinism (this was back in March) and she said she had an 18-inch doll in the works. Well, she did it, she created Alexa. Alexa was designed to "help create awareness … Continue reading Alexa, the newest lady to join Malaville
A short and sweet post to share this gem of a booklet produced by the Nystagmus Network: nystagmus-booklet-for-teachers-january-2017. The Nystagmus Network is committed to distributing information about nystagmus, supporting the research into a potential treatment and raising awareness of the condition. I have learned more about Nystagmus in the past few months since I connected with this organization than … Continue reading Nystagmus Network
Thousands of people with albinism are at huge risk of being abducted and killed in Sub-Saharan African communities, especially among East Africans. Malawi is one such country whose superstitious beliefs are perpetuating attacks on people with albinism. Many people believe that the body parts of a person with albinism are thought to transmit magical powers. These beliefs are … Continue reading Petition to Malawian President
Thanksgiving is just around the corner, this holiday doesn't hold much meaning to me being a Brit by birth. I do however enjoy taking time out to be thankful, so despite my misgiving about celebrating this day, it is still a day that stands out. It is a day where I can intentionally take a breath, be aware … Continue reading Something to be thankful for
Once upon a time in a land long ago a little girl told her fairy godmother that she would never ever give birth to a child, the thought horrified her and she felt no real connection or yearning to be a mother one day. Okay so this isn't some fairy tale, the girl was me … Continue reading The beauty of adoption
