My boys and I took a little trip when I say little I mean a 10-hour flight across the ocean to the motherland. We made it in one piece, my sanity still intact looking a little disheveled and covered in various crumbs and stains from the hundreds of snacks my kids wanted to eat. The … Continue reading Across the pond
One of the main purposes for starting this blog was to spread awareness about albinism. When I talk about awareness I mean sending a message, getting attention, and getting people to talk about albinism even if it is in the smallest way. I hope that by doing this the few people who read my blog take … Continue reading Outside The Box
Hilton Langenhoven won gold in the long jump at the Paralympic games. He is a South African athlete and 3-time Paralympic champion who just so happens to have albinism. I noticed in a picture of him carrying his countries flag that he had some awesome sunglasses on and it started to make me think about what makes … Continue reading What makes a great pair of sunglasses?
After seeing a post on Facebook the other day I was reminded that I wanted to write a little bit about the other syndromes associated with Albinism in a bid to spread awareness to parents of kids with albinism. I briefly touched on or maybe mentioned that there are other syndromes that can be related to … Continue reading Albinism and its related syndromes
I am sitting here in the dark, sweaty and hot with a head light on my head since our power has gone out. Welcome to Houston! We just got back from a wonderful trip visiting some friends in the not so stinking hot Lake Tahoe area. After settling the screaming children, one who was frightened and … Continue reading Depth perception
This came through my email this morning and thought it was worth a share: The Albino Code Dennis Hurley is a man with albinism and in 2006 he released a short movie, The Albino Code, a parody of The DaVinci Code which he wrote and starred in. He likes to poke fun at the often cliched writing and casting decisions Hollywood … Continue reading The Albino Code
The word Albino is it a derogatory word or just another label among the masses of labels we accumulate as human beings? The word is thought to come from the Latin, albus, meaning white. It also means blank, as in devoid of color or features. Bill Sherk author of the 500 Years of New Words, states the word … Continue reading Is Albino a derogatory word.
When I was living in Scotland applying sunscreen was at the bottom of my to do list even on rare hot days. Pregnant and breastfeeding women are encouraged to take Vitamin D supplements due to the lack of sunlight. Apparently Scots only get enough sunlight of the right wavelength for their bodies to make Vitamin D … Continue reading Sunscreens
I recently had the pleasure of seeing my cousin who was on a business trip in Houston. It was a real treat to catch up. Since most of my family live in Europe it is not everyday I get to spend time with them. During our visit he got to meet Nash for the first time. … Continue reading The Reality of Visual Impairment
Moving forward after a diagnosis of Albinism.