Hello, 2019 I'm thankful for this new year, full of new adventures and a new set of challenges. It's been six months since I came on here to write anything, the last six months have been focused on family and work. I feel like I haven't had the bandwidth for anything else, fitting in a … Continue reading 2019 Here we go!
The other day a friend asked me, "What does ARD stand for?" After just coming out of a 2 hour ARD meeting you think I would know but in fact, I had no idea. And yes, I am the kind of person that goes out into the world without having all the details even when … Continue reading ARD
The above campaign slogan was used in the United Kingdom for the phone company Orange. It won't mean a thing if you are reading this and you are from the US. I felt like this slogan was blasted on the TV/radio for years and after not hearing it in a long time as my family … Continue reading “The Future’s Bright the Futures Orange.”
Today is almost over here in Houston Texas and it is certainly over for many of our friends and family on the other side of the world. If you didn't know today is Giving Tuesday, a day of giving moved by the power of social media and collaboration. It is a day to celebrate and encourage … Continue reading Giving Tuesday
A curious thing started happening, Nash's hair has started changing colour. I say curious because I didn't think this could happen to a person with albinism. The featured image shows the darker areas of Nash's hair at the roots. We knew the type of albinism he has means he has some pigment but I just … Continue reading Changing pigment
What is the idea behind IDEA? For those of you living elsewhere in the world this Federal Law won't concern you much but for those of us living in America who have kids with disabilities, it is a pretty important law. I have to admit that even though I have a kid with a disability … Continue reading What is the idea behind IDEA?
Today is International Albinism Awareness Day. In 2014 the General Assembly adopted a resolution proclaiming, with effect from 2015 that June 13th be known as International Albinism Awareness Day. People with albinism all over the world face discrimination particularly those living in Africa. Albinism also continues to be misunderstood socially and medically even here in America. I … Continue reading International Albinism Awareness day