I just looked back at a facebook post from the end of 2019 that said this "Happy New year to all my friends across the globe, miss you, love you and hope 2020 brings great joy." Sure Laura nice sentiment if only foresight was my thing. This year has seen America become even more divided, … Continue reading NOAH Conference 2020
Tag: Oculocutaneous Albinism
Surviving the summer poolside
What happens when you are trying to survive the summer during COVID-19 in Texas? You head to your community pool thats what but with that comes all the extra need for sun protection and a bucket load of hand sanitizer. I hear you thinking community pool and COVID-19 well our pool is pretty unique. It … Continue reading Surviving the summer poolside
This morning as I was breaking one of my two New Year resolutions, to be on my phone less around my children, the second is yelling (broke that one probably the second day of the new year) - I came across an interesting video titled Breaking Myths about albinism. Here was a simple way I … Continue reading Breaking Myths
2019 Here we go!
Hello, 2019 I'm thankful for this new year, full of new adventures and a new set of challenges. It's been six months since I came on here to write anything, the last six months have been focused on family and work. I feel like I haven't had the bandwidth for anything else, fitting in a … Continue reading 2019 Here we go!
Low Vision Conference
What I learned at a Low Vision Conference!
Skin Cancer Awareness Month
Here we are again the month of May, the month of warmth, rabbits, and fertility (or so I hear). May is also known as Skin Cancer Awareness Month. If you live in a hot location it should really be Skin Cancer Awareness Month every month. Oh, how I wish I could transport back to my 16-year-old … Continue reading Skin Cancer Awareness Month
The other day a friend asked me, "What does ARD stand for?" After just coming out of a 2 hour ARD meeting you think I would know but in fact, I had no idea. And yes, I am the kind of person that goes out into the world without having all the details even when … Continue reading ARD
“The Future’s Bright the Futures Orange.”
The above campaign slogan was used in the United Kingdom for the phone company Orange. It won't mean a thing if you are reading this and you are from the US. I felt like this slogan was blasted on the TV/radio for years and after not hearing it in a long time as my family … Continue reading “The Future’s Bright the Futures Orange.”
Today is almost over here in Houston Texas and it is certainly over for many of our friends and family on the other side of the world. If you didn't know today is Giving Tuesday, a day of giving moved by the power of social media and collaboration. It is a day to celebrate and encourage … Continue reading Giving Tuesday
Alexa, the newest lady to join Malaville
I emailed a lady called Mala Bryan a while back asking if she was indeed going to make a doll that resembled a person with albinism (this was back in March) and she said she had an 18-inch doll in the works. Well, she did it, she created Alexa. Alexa was designed to "help create awareness … Continue reading Alexa, the newest lady to join Malaville