After seeing a post on Facebook the other day I was reminded that I wanted to write a little bit about the other syndromes associated with Albinism in a bid to spread awareness to parents of kids with albinism. I briefly touched on or maybe mentioned that there are other syndromes that can be related to … Continue reading Albinism and its related syndromes
I feel like I haven't written anything in a while although it probably hasn't been that long and really this blog wasn't intended to be a summary of my daily life. You would be bored senseless if it was. I woke up this morning and noticed an article about a young girl walking the red … Continue reading Albinism awareness one red carpet at a time.
I started writing a post about glasses a while ago and then abandoned it in my drafts section most likely because I found something else to write about. Well here I am picking it up again and majorly editing it. The time has come that our little Nash has finally received his first pair of … Continue reading Glasses, Glasses, Glasses
This came through my email this morning and thought it was worth a share: The Albino Code Dennis Hurley is a man with albinism and in 2006 he released a short movie, The Albino Code, a parody of The DaVinci Code which he wrote and starred in. He likes to poke fun at the often cliched writing and casting decisions Hollywood … Continue reading The Albino Code
When I was living in Scotland applying sunscreen was at the bottom of my to do list even on rare hot days. Pregnant and breastfeeding women are encouraged to take Vitamin D supplements due to the lack of sunlight. Apparently Scots only get enough sunlight of the right wavelength for their bodies to make Vitamin D … Continue reading Sunscreens
I recently had the pleasure of seeing my cousin who was on a business trip in Houston. It was a real treat to catch up. Since most of my family live in Europe it is not everyday I get to spend time with them. During our visit he got to meet Nash for the first time. … Continue reading The Reality of Visual Impairment
Its been over a year since Nash's diagnosis and the one thing that I have had a personal struggle with more than anything are the wide-eyed glances I get when I am out with my boys. Generally I try to hold my head high with Nash strapped to my front and my 3 year old running around my … Continue reading Wide-eyed glances
This is the excerpt for your very first post.