I feel like I haven’t written anything in a while although it probably hasn’t been that long and really this blog wasn’t intended to be a summary of my daily life. You would be bored senseless if it was. I woke up this morning and noticed an article about a young girl walking the red carpet with Beyoncé at the VMA awards, she has albinism. This isn’t the first time she has had a model with albinism in one of her videos. Since I am all for spreading awareness I wanted to share.
I am always amazed how little people know about albinism but that is only because I have learned so much in the last year. I was once one of those people and I have to remind myself that many times (or my husband does, thank you spouse). I generally use the term Albinism when talking about Nash, however, I think the term throws people. An elderly couple on our vacation asked me at the checkout of the local grocery store how I knew that my son needed glasses so young. I wasn’t sure how to respond so I told them he had albinism and that is how we knew. When I said “albinism,” they said “autism,” I said, “no albinism,” they said, well you can imagine how that conversation continued. I tried, I failed! What is it they say you win some, you lose some? I’d like to think they maybe went home and searched on the internet to see what that crazy mother at the grocery store was talking about but I doubt it. For further reading about the beautiful Ava Clarke please see the link below.